Watching this I had no idea this genetic disorder existed. This young man and the many young men and women like him face an uphill battle daily. One they will unfortunately never win. I saw this story on FB and thought best to share this with you all. This young man shows such posie and maturity while toughing it out through his pain, day in and day out. This is what you call courage.
To understand what Recessive Dystrophic Epidermolysis Bullosa (RDEB) is (also known as a severe form of EB), please click here: http://debracanada.org/butterfly-ambassador-jonathan-pitre
**Warning: this video may show some scences that are not suitable for all audiences. Viewer discreation is advised.**